FurtherMore has been launched by Eisai with advice from
pan-European and national patient associations.
The campaign showcases the lives of women with advanced or metastatic breast cancer (MBC) across the world through real and personal experiences. Many of these women have found something unexpected from their diagnosis; something universal; a deeper sense of meaning in their lives and their hopes for living as long as possible. FurtherMore explores metastatic breast cancer though these powerful stories, and celebrates what can be achieved when people with this diagnosis get the support they need to live a normal life.
The hope is that, through these stories, we will raise awareness of metastatic breast cancer, and empower all those affected by the disease to go further in sharing information with their healthcare professional about how they truly wish to live with their diagnosis.
‘Radio Silence’ in
metastatic breast cancer
To understand challenges currently faced by people with metastatic breast cancer and the doctors that care for them, two surveys were funded and initiated by Eisai Europe Ltd:
- A patient survey was distributed via patient advocacy groups and through HealthUnlocked between 12–28 August 2018 and had 171 responses from four European countries (France, Italy, Spain and UK) and Russia.
- A doctors/nurses survey was distributed via SERMO between 12–24 August 2018 and had 82 responses from four European countries (France, Italy, Spain and UK).
Eisai received advice from the following patient advocates and healthcare professionals who provided insights into the survey findings and call-to-action to address the unmet patient and HCP needs in metastatic breast cancer for inclusion in the ‘MBC Radio Silence’ report:
- Professor John Crown, Consultant Medical Oncologist at St Vincent's University Hospital in Dublin, Ireland.
- Dr Alexia Bertuzzi, Consultant Medical Oncologist at the Humanitas Research Hospital IRCCS in Milan, Italy.
- Dr Ana Casas (Actitud frente al Cancer), Medical Oncologist at the Fundación Actitud frente al Cáncer, at the Virgen del Rocío Hospital, Seville, Spain.
- Elisabetta Veneziani Santonio, AYA Collaborator at the Adolescents and Young Adults (AYA) project at the Cancer Center Istituto Clinico Humanitas in Milan, Italy.
- Jean Robinson, advanced breast cancer patient.
- Andrea Cannon, Breast Care Nurse Consultant, Think Pink Foundation, Australia.
The resulting ‘MBC Radio Silence’ report highlights that many women with advanced breast cancer feel isolated, nervous and alone. In addition, there is a growing need for doctors/nurses to manage both the physical and emotional aspects associated with the disease. It outlines the following call-to-action’ points identified to improve the management and experience of people with this advanced diagnosis.
There is a need to have:
- Improved public awareness of metastatic breast cancer as a distinct disease
- More tailored support for the unique needs of people with metastatic breast cancer
- Greater focus on providing routine access to multidisciplinary teams from the point of diagnosis
Finding it hard to talk about living with metastatic breast cancer?
Explore our guide on making difficult conversations better
The truth is, it is not always easy to talk about metastatic breast cancer. By talking to people living with this disease, we have learned that they often struggle to have the conversations they want to have, even with those they are closest to. Sometimes the most important conversations are the hardest for people to tackle – whether that’s discussing end-of-life care or financial and family arrangements after death.
My BroadCast Companion, a resource developed in collaboration with people living with metastatic breast cancer and experts involved in their treatment, aims to help people living with it and those around them – including friends, family and healthcare professionals – to break the silence that can come with a diagnosis. The guide is packed with tips and advice to make having these difficult conversations a little bit easier.
Read our conversation guide: My BroadCast Companion: Talking about living with metastatic breast cancer
Click here to download the guide
“EVERYDAY BRINGS SOMETHING NEW
For most of us survival is something we take for granted, but many people with advanced or metastatic breast cancer have found something unexpected from their diagnosis; something universal; a deeper sense of meaning in their lives.
The FurtherMore campaign now calls on people with metastatic breast cancer and their families, to share their own unique and inspiring stories with #FurtherMore #MBC, and celebrate how they are living their lives with:
- More moments
- More milestones
- More memories
The hope is that, through these stories, we will raise awareness of metastatic breast cancer, and empower all people affected by the disease to go further in sharing information with their healthcare professional about how they truly wish to live out the remainder of their lives.
Please consider sharing your moments, milestones and memories via social media with #FurtherMore #MBC and inspire others to do the same.
The FurtherMore photobook and film provide a glimpse into the worlds of six unique and inspirational women living with advanced breast cancer from across five countries, including Australia, the Netherlands, Russia, Spain and the UK. Through these real and personal experiences, they explore what living with advanced breast cancer means, highlighting the moments experienced after their diagnosis and the memories they have created with their loved ones.
Click here to view the book or here to view the film and share with your loved ones.